Kirk's Blog

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Kirk started writing articles for his blog around the time his first book was published (September 2011). Not having any other bright ideas at the time, he adopted the book title as his “brand” for the blog. Over time, Shaky Paws Grampa (SPG) has become his “identity” in the PD world. The good news is that he hasn’t had to fight anybody for it and there was no competition for the web address (understandably).

He didn’t have any clear goals in mind for the blog when he started other than to make his target audience the “PD world”, opting to write about what ever inspired him at the moment. Over time, various themes emerged:

Book or writing-related
PD-related information
Clinical research study advocacy/participation
Cognition issues
Living with PD-personal
PD meeting/conference announcements
SPG speaking engagements, media interviews, and webinars
Calls to action
Personal

Three years later, he has posted 120 articles that have been viewed by readers from over 60 countries around the world.

Wassup with SPG

 

Just when I thought I was ready to begin to slow down a bit, my plans were derailed. But in a good way.

My involvement with the West Side Tremble Clefs PD singing group is taking center stage right now. We have a major fundraiser this Sunday (November 12) at the United Church in Sun City, AZ. Though my voice is not what it used to be, I am one of a number of folks singing solos. There are 60+ voices in the group in various stages of PD. Some still have outstanding voices. Some have regained or dramatically improved their voices due to participation in the group, which is led and inspired by Sun Joo Lee. I have been communicating with the founder of Tremble Clefs in San Diego, Karen Hesley, about organizational strategies they are pursuing. She has been very helpful and we plan to stay in touch.

The PD palliative care research study I have written about previously has finished the recruiting phase, about half of the participants have been interviewed, and analysis has begun. Linda and I are among the caregivers and PwPs who are participating in the analysis by reviewing transcripts of the interviews and providing feedback. Consistent with the rest of the project, we thought it would be important to provide patient/caregiver feedback. We plan to be involved in the balance of the study which should be finished some time in 2018.

I am once again a blogger partner for the upcoming World Parkinson Congress to be held in Kyoto, Japan in 2019. I spent a good deal of time in Japan when I was working in the consumer electronics industry back in the 80’s and early 90’s.

Linda and I continue to be members of the Parkinson Advocates in Research (PAIR) program which is now part of the new Parkinson Foundation organization. We have both participated extensively in clinical research studies.

We have also both been very involved with the Parkinson Association of the Rockies (PAR). One of the highlights of the year for them is their annual Vitality Walk fundraiser. Linda has been a member of the organizing committee for a number of years and two of our grandchildren participated this year as volunteers. We were honored to take part in the filming of a tribute video along with our two grandchildren. This enabled us to see a side of them we don’t often see.

Don’t get me wrong, we still have plenty of time to enjoy life and live in the moment. Actually, I think our involvement allows us to enjoy our “down time” even more!

I Have a Dream Today